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Welcome

Untitled document

The Frontotemporal Dementia Support Group is particularly directed towards carers who are coping with behavioural changes in a partner, family member or friend as a result of frontotemporal dementia.

Caring for people with frontotemporal dementia is hard, there are few facilities tailored for the younger sufferer and those are not always appropriate for people with frontotemporal dementia. Also there are no specific treatments yet for frontotemporal dementia. All this adds to the distress, isolation and burden of caring. The FTDSG tries to decrease the burden by providing information and support.

 The Frontotemporal Disease Support Group incorporates:

Behavioral Variant Frontotemporal Dementia [including Pick's Disease]
 
Primary Progressive Aphasia , which includes:  Progressisve Non-Fluent Aphasia, Semantic Dementia and Logopenic Aphasia
There is a specific support group for people with Primary Progressive Aphasia. Contact jill.walton@ftdsg.org for more information or visit http://www.drc.ion.ucl.ac.uk/
 
Alcohol related dementia                                
 
                                                                 
   
   

 

The FTDSG is under the umbrella of The National Brain Appeal [formerly the National Hospital for Neurology and Neurosurgery Development Foundation] Registered Charity Number 290173

DISCLAIMER: The information contained on our website, in our newsletters and at support group meetings is for general information purposes only.Please note that you assume full responsibility and risk for attendance at any support group meetings,  and for  the appropriate use of information obtained via this website, our newsletters or obtained at support group meetings .

 

The FTDSG works closely with the Association for Frontotemporal Degeneration , an American group dedicated to the support of people with FTD and their carers. Please also visit their site at www.theaftd.org for more information about the disease.

 

Other dementias can also lead to behavioural problems, and whilst we are happy to support people wherever possible, information about those dementias and support can also be found at the following sites:

 

   www.parkinsons.org.uk/      www.lewybody.org       [ Lewy Body Dementia ]

 

   www.pspeur.org      [ Corticobasal Degeneration ]

 

   www.mndassociation.org/      [Motor Neurone Disease ]

 

  www.alzheimersresearchuk.org

 

  www.alzheimers.org.uk 

 

A site which provides jargon free research updates on FTD for all people in the FTD community can be found at;

www.ftdtalk.org